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‘You Two’: The Therapeutic Power of Pets for CF Patients

‘You Two’: The Therapeutic Power of Pets for CF Patients

Published on July 21, 2022

Originally posted on Cystic Fibrosis News Today. The song “You Two” from “Chitty Chitty Bang Bang” inspired my dream of adopting twins from a young…

Why I Developed a Fear of Airplanes as an Adult With CF

Why I Developed a Fear of Airplanes as an Adult With CF

Published on July 14, 2022

Originally posted on Cystic Fibrosis News Today As a cystic fibrosis (CF) patient and advocate, I’ve been asked to travel to multiple out-of-state events, but I’m afraid…

Finding Your Identity in Matters of Life and Death

Finding Your Identity in Matters of Life and Death

Published on July 7, 2022

Originally posted on Cystic Fibrosis News Today I’m thankful to be alive. I was supposed to leave this world before I was 10 years old.…

Let’s Maintain Hope, Even When History Repeats Itself

Let’s Maintain Hope, Even When History Repeats Itself

Published on June 30, 2022

Originally posted on CF News Today I recently watched the 2021 remake of “West Side Story.” It was my first viewing of the musical, a…

How I Turned My Cystic Fibrosis Advocacy Into Part Of My Career

How I Turned My Cystic Fibrosis Advocacy Into Part Of My Career

Published on June 23, 2022

Originally posted on Cystic Fibrosis News Today. “Something Rotten!” is one of my favorite Broadway shows. I wrote about this musical comedy before in a…

The Many Colors of Cystic Fibrosis: Yellow (Part 1)

The Many Colors of Cystic Fibrosis: Yellow (Part 1)

Published on June 22, 2022

Originally posted on Cystic-Fibrosis.com https://cystic-fibrosis.com/living/yellow When I was a child, I fell in love with the show Joseph and the Technicolor Dreamcoat and its colorful…

I Must Use My Energy Wisely, But Use It I Can

I Must Use My Energy Wisely, But Use It I Can

Published on June 16, 2022

Originally posted on Cystic Fibrosis News Today. When my body feels like it’s running on fumes and I’m in need of a pick-me-up, I watch…

‘My Shot’: What is Means To Be A Survivor

‘My Shot’: What is Means To Be A Survivor

Published on June 9, 2022

Originally posted by Cystic Fibrosis News Today. My family and I were finally able to see the Broadway sensation “Hamilton” live on stage at the…

‘Dust and Ashes’: Feeling Like a Burden Kept Me From Being Transparent

‘Dust and Ashes’: Feeling Like a Burden Kept Me From Being Transparent

Published on May 26, 2022

Originally posted on Cystic Fibrosis News Today My biggest fear as a child was being a burden to friends and family due to my cystic fibrosis (CF). I…

The Many Colors of Cystic Fibrosis: Purple (Part 2)

The Many Colors of Cystic Fibrosis: Purple (Part 2)

Published on May 25, 2022

Originally posted on Cystic-Fibrosis.com https://cystic-fibrosis.com/living/purple-cf In my previous article, I explained the importance of the color purple, including the annual Great Strides walk. Let’s continue to…

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