Latest Articles
- Foster Parent Blog: Nesting
- The Many Colors of Cystic Fibrosis: Orange (Part 2)
- The Many Colors of Cystic Fibrosis: Orange (Part 1)
- Onlooker Play: Why Parents Need To Read “Rooker The Looker”
- ‘One Last Time’: Saying farewell to my column
- ‘Freak Flag’: Rare Disease Day
- Foster Parent Blog: Cost
- The Many Colors of Cystic Fibrosis: Grey (Pt 1)
- Foster Parent Blog: How?
- Foster Parent Blog: Why
- Foster Parent Blog: Introduction
- Living With Cystic Fibrosis Means I’m Bad At Sticking To a Routine
- Why I Wish Mask Mandates Were Still In Place
- How My Fight For Antibiotics Reminds Me of ‘Titanic’: Part 3
- The Many Colors of Cystic Fibrosis: Black (Part 2)
- The Many Colors of Cystic Fibrosis: Black (Part 1)
- How My Fight For Antibiotics Reminds Me of ‘Titanic’: Part 2
- How My Fight For Antibiotics Reminds Me of ‘Titanic’: Part 1
- The Many Colors of Cystic Fibrosis: Beige (Part 2)
- The Many Colors of Cystic Fibrosis: Beige (Part 1)
- The Many Colors of Cystic Fibrosis: Yellow (Part 2)
- Weighing My Desire to Get a Tattoo Against the Potential Risks
- The Difficulties of Diving Back in After Taking a Hiatus
- Telling Healthy Colleagues About My Terminal Illness
- How My Priorities Change When My Lungs Hold Me Hostage
- The Importance of Frivolity on My Journey With CF
- ‘Astonishing’ Acts of Feminism Throughout My Journey with Cystic Fibrosis
- ‘You Two’: The Therapeutic Power of Pets for CF Patients
- Why I Developed a Fear of Airplanes as an Adult With CF
- Finding Your Identity in Matters of Life and Death
- Let’s Maintain Hope, Even When History Repeats Itself
- How I Turned My Cystic Fibrosis Advocacy Into Part Of My Career
- The Many Colors of Cystic Fibrosis: Yellow (Part 1)
- I Must Use My Energy Wisely, But Use It I Can
- ‘My Shot’: What is Means To Be A Survivor
- ‘Dust and Ashes’: Feeling Like a Burden Kept Me From Being Transparent
- The Many Colors of Cystic Fibrosis: Purple (Part 2)
- The Many Colors of Cystic Fibrosis: Purple (Part 1)
- ‘Watch What Happens’: The Importance of Writing
- ‘When I Grow Up’: Aging With CF is a Gift
- ‘Welcome to the Renaissance’: A New Beginning for CF Patients
- ‘The Next Right Thing’: Overcoming Burnout
- The Importance of Support Systems When Managing Chronic Illness
- Make-A-Wish Alumni Feature
- ‘Everybody Fits’: How Neurodivergence Affected My CF Journey
- ‘I Believe’: Blind Faith vs. Blind Trust
- ‘Schadenfreude’: Experiencing Pain and Solidarity
- The Many Colors of Cystic Fibrosis: Brown (Part 2)
- The Many Colors of Cystic Fibrosis: Brown (Part 1)
- Celebrating ‘Company’: Visitors at the Hospital
- ‘Big Fun’: My Make-A-Wish
- Art Night
- We’re a 501(c)3!
- ‘You’re Wonderful’: How Society Labels CF Patients
- February Newsletter
- ‘Strangers Like Me’: An Open Letter to the CF Community
- ‘Her Voice’: How Cystic Fibrosis Affects Vocals
- Professional “My Pants” Review
- “My Pants” Won It’s Second Award
- The Many Colors of Cystic Fibrosis: Clear
- ‘How Far I’ll Go’: Proving My Rare Disease Does Not Define Me
- ‘Mucus of the Night’: Dealing With CF-related Sleep Issues
- “My Pants” won it’s first award!
- January Newsletter
- A Spoonful of Sugar: My Diabetes Diagnosis, Part 2
- A Spoonful of Sugar: My Diabetes Diagnosis, Part 1
- New Year’s Resolutions for the Chronically Ill
- How Chronic Illness Affected My Education
- ‘Be Our Guest’: Canceling Get-togethers Due to Chronic Illness
- The Many Colors of Cystic Fibrosis: Green
- ‘Grow Old With You’: Lasting Relationships With Chronic Illness
- Linda’s Story
- Finding Peace With My New Body Means Accepting Change
- Is Being Transparent About Chronic Illness Appropriate?
- Rock CF Foundation is our new sponsor!
- Katie’s Story
- “Two Cents” ebook is FREE
- “Two Cents” is free on Amazon Kindle
- The Many Colors of Cystic Fibrosis: Red Part Two)
- Winry’s Story
- Avery’s Story
- Marisa’s Story
- The Many Colors of Cystic Fibrosis: Red (Part One)
- ‘Blow, Nicole, Blow’: My Journey With PFT’s
- Nicole Kohr hosts Great Strides
- CFF Event: Brewer’s Ball (At Home!)
- CFF Webinar: Impact of Your Voice
- My Annual Tenth Birthday: a new project
- ‘It’s Not Over Yet’: What It Means To Be Chronically Ill
- ‘Satisfied’ (With My Care)
- ‘Look At Me, I’m Atrophy’: Being Chronically Ill At Halloween
- “My Pants” is nominated for a Readers Choice Award
- “My Pants” Book Review by Grace Jackson
- Lets Rock CF launches a brand new t-shirt inspired by “Fall Risk The Musical”
- ‘The Nicest Kids in Town’: My Complex Relationship With Medical Residents
- Colie Creations Inc is hiring an illustrator!
- I Want To Do More Than Survive In Life After Transplant
- Happy 20th Anniversary, Bristol-Myers Squibb Children’s Hospital!
- ‘Changing My Major (Organs)’: A Chronicle of Bilateral Lung Transplant
- ‘Disappear’: What It’s Like to be Absent From Your Own Life
Columns
Lung, Scrappy, and Hungry (Cystic Fibrosis News Today)
The Many Colors of Cystic Fibrosis (Cystic-Fibrosis.com)
