Uncategorized Archives - Page 5 of 13 -

‘You’re Wonderful’: How Society Labels CF Patients

March 5, 2022May 18, 2022 NicoleUncategorizedTagged cf advocate, CF Community, Column, community, label, social media, stories, transparency, Wicked

Originally posted on Cystic Fibrosis News Today “Is one a crusader or ruthless invader?/ It’s a...

‘Strangers Like Me’: An Open Letter to the CF Community

February 24, 2022May 3, 2022 NicoleUncategorizedTagged bilateral lung transplant, CF Community, Column, connection, Great Strides Walk, movies, music, musicals, social media, Tarzan

Original publication on Cystic Fibrosis News Today. Movie musicals are the hottest trend in the musi...

‘Her Voice’: How Cystic Fibrosis Affects Vocals

February 17, 2022May 18, 2022 NicoleUncategorizedTagged acid reflux, breathing, Column, coughing, Disney, Little Mermaid, sing, singing, speech, technique, vocals, voice

Original publication via Cystic Fibrosis News Today. “Her Voice” from Disney’s “The Little M...

Professional “My Pants” Review

February 15, 2022February 20, 2022 NicoleUncategorizedTagged Award, Children's Book, My Pants, Review

Jendi Reiter, fiction writer and Vice President of Winning Writers, reviews Nicole’s latest childr...

“My Pants” Won It’s Second Award

February 15, 2022February 15, 2022 NicoleUncategorizedTagged Children's Book, My Pants

I’m so excited and proud to announce that “My Pants” won a SECOND award. An enormous thank you...

The Many Colors of Cystic Fibrosis: Clear

February 11, 2022May 8, 2022 NicoleUncategorizedTagged clear, color, Column, communication, diabetes, Dream Coat, fluids, hydration, infection, Joseph, journey, lungs, mucus, nail polish, path, soda

Originally posted on Cystic-Fibrosis.com https://cystic-fibrosis.com/living/cf-stories-clear?fbclid=...

‘How Far I’ll Go’: Proving My Rare Disease Does Not Define Me

February 10, 2022May 18, 2022 NicoleUncategorizedTagged cf diagnosis, Column, Disney, humor, identity, isolation, lack of weight gain, moana, musicals, writing

Originally posted on Cystic Fibrosis News Today. Does my disease define me? I’ve been battling thi...

‘Mucus of the Night’: Dealing With CF-related Sleep Issues

February 3, 2022May 18, 2022 NicoleUncategorizedTagged acid reflux, cf medication, Column, cough, mucus, Opera, Phantom, Phantom of the Opera, sleep, sleeplessness, trikafta

Originally posted on Cystic Fibrosis News Today. For those unfamiliar with the Broadway sensation �...

“My Pants” won it’s first award!

February 2, 2022February 20, 2022 NicoleUncategorizedTagged Award

I’m officially an award-winning author! Thank you, Society of Children’s Book Authors and Illust...