Foster Parent Blog: Going on Vacation
Going With The Child We’ve taken two children on vacations. These were the logistics: Vacation t...
Category: Uncategorized
Foster Parent Blog: Our Final Foster Child
Baby K left our home on February 6th at 6:30pm. While I’m a heart broken mess (as are mom and Jare...
The Many Colors of Cystic Fibrosis: Orange (Part 2)
Originally posted on cystic-fibrosis.com. Let’s get back into cystic fibrosis (CF) and the color o...
The Many Colors of Cystic Fibrosis: Orange (Part 1)
Originally posted on cystic-fibrosis.com I love viewing my journey with cystic fibrosis (CF) through...
Onlooker Play: Why Parents Need To Read “Rooker The Looker”
4.4.23 While I’ve always been an empath, exhausted and overwhelmed by crowds, lets save the “int...
‘One Last Time’: Saying farewell to my column
Columnist Nicole Kohr thanks her cystic fibrosis community for their support “One Last Time” fro...
‘Freak Flag’: Rare Disease Day
Two things come to mind when I think about Rare Disease Day: community and “Freak Flag” from “...
The Many Colors of Cystic Fibrosis: Grey (Pt 1)
Originally posted on Cystic-Fibrosis.com My journey with cystic fibrosis (CF) has been very colorful...
Living With Cystic Fibrosis Means I’m Bad At Sticking To a Routine
Originally posted on cystic fibrosis news today I don’t find routine to be rewarding. At most, it...
Why I Wish Mask Mandates Were Still In Place
Originally posted on cystic fibrosis news today. One of Disney’s latest creations is “Disenchant...