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  • Home
  • About
    • The Founder
    • Our Mission
    • Press
    • Contact
  • Books
    • “ABC Checkup”
    • “My Pants”
    • “Two Cents”
    • “Last Straw”
    • “Rooker The Looker”
    • “Water Your Human”
    • “My Washer Dryer: A Story About Lung Transplant”
  • Events
    • Book Nicole
    • Past Events
      • MacAfee Road School Visits
      • Goddard School Visits
      • Giving Tuesday 2024
      • Art Night
      • Bookstore Appearances
      • Foster Parent Presentation with D.S.S.
      • “My Pants” Baby Fashion Show 2022
      • “My Pants” Baby Fashion Show 2021
  • Musicals
    • “Fall Risk The Musical”
  • Blog
    • All Articles
    • Adoption Blog
    • Foster Parent Blog
    • Featured Articles
    • “Lung, Scrappy, and Hungry” (Archived)
    • “The Many Colors of Cystic Fibrosis” (Archived)
  • Donate

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Category Archives: Uncategorized

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  2. Category Archives: Uncategorized

Category: Uncategorized

Healthcare and Fashion: Send In The Gowns

September 2, 2021May 8, 2022 NicoleUncategorizedTagged accessibility, accessible, Broadway, clothing, Column, fashion, gown, hair, healthcare, Hospital, inpatient, Little Night Music, outpatient, shoe
Originally published on Cystic Fibrosis News Today. If you plan on dressing like a doctor or a nurse...

Colie in the Bathroom

August 26, 2021May 8, 2022 NicoleUncategorizedTagged acceptance, accommodations, bathroom, beach, Column, faint, hair loss, hide, high calorie diet, Hospital, nebulizer, relax, rest
Originally published on Cystic Fibrosis News Today. I assume the bathroom is a sterile, uncomfortabl...

You Learn (About Cystic Fibrosis)

August 19, 2021May 8, 2022 NicoleUncategorizedTagged advocacy, advocate, awareness, Column, communication, emotions, Fall Risk, history, learn, learning, logistics, teach
Originally posted on Cystic Fibrosis News Today. “Fall Risk” is a new musical comedy about cysti...

‘And I Am Telling You I’m Not Going’ (to the Clinic)

August 12, 2021May 8, 2022 NicoleUncategorizedTagged advice, anxiety, appointment, clinic, Column, communication, doctor, Dream Girls, expectations, Guilt, medication, Patient, PFT, pulmonary function test, support system, tips, transparent
Originally posted on Cystic Fibrosis News Today. Clinic anxiety is real, especially if you’re fr...

The Many Colors of Cystic Fibrosis: Blue

August 6, 2021May 8, 2022 NicoleUncategorizedTagged awareness, blue, Column, Dream Coat, Joseph, oxygen, ribbon
Originally posted on Cystic-Fibrosis.com https://cystic-fibrosis.com/living/blue Joseph and the Tech...

‘Me Ol’ Shampoo’: How My Health Has Affected My Hair

August 5, 2021May 8, 2022 NicoleUncategorizedTagged aesthetic, Chitty Chitty Bang Bang, color, Column, conditioner, Gastroparesis, hair, hair care, hair loss, medication, moana, shampoo, transplant, treatment
Originally posted on Cystic Fibrosis News Today. Hair has always been a huge part of my identity. So...

We’re filing the paperwork to become a 501(c)(3) organization!

July 30, 2021February 15, 2022 NicoleUncategorized
Stay tuned for updates!...

Dancing the ‘Tango: Chlorine’

July 29, 2021May 8, 2022 NicoleUncategorizedTagged bottled, cellcept, Column, dehydration, fluid, foreign bodies, hydrate, hydration, immune system, immunosuppressed, lung, medication, POTS, rejection, rent, tacrolimus, transplant, virus
Originally posted on Cystic Fibrosis News Today. If I were a superhero, my Achilles’ heel would be...

The Sun’ll Come Out – In 2 Weeks?

July 22, 2021May 8, 2022 NicoleUncategorizedTagged admission, annie, antibiotics, Column, Hospital, isolation, IV treatment, stay, sun, treatment, tune up, tuneup, two, weeks
Originally posted on Cystic Fibrosis News Today. Most cystic fibrosis (CF) patients are admitted to ...

Making Friends With Latex Predators

July 15, 2021May 8, 2022 NicoleUncategorizedTagged advocate, Column, diagnosis, doctor, doctors, latex, Mean Girls, New Jersey, North Carolina, pediatric, pediatrician, pulmonologist, team
Originally posted on Cystic Fibrosis News Today. A funny female pediatrician named Dr. C diagnosed...

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