Cystic fibrosis (CF) is a genetic disease that primarily affects the lungs and digestive system. Nicole Kohr was diagnosed with CF at age five. To learn more about CF, visit cff.org.
Colie's Scrapbook
Resources
Watch the 2021 Great Strides Video – Nicole Hosts Virtually
Watch the 2022 Great Strides Video – Nicole is the Guest Speaker In Person
Great Strides is a fun event that provides a fantastic opportunity for family, friends, students, and colleagues to come together to make a difference in the lives of people with CF. Walk with us (virtually or in person)!
Join Nicole’s team as a walker or fundraiser here.
You can learn more about Nicole’s Great Strides Team here.
Watch Nicole speak on the Pasteur Act/AMR panel at IQVIA.
The Congressional Cystic Fibrosis Caucus unites bipartisan members from both chambers to raise awareness for CF; support CF research, drug discovery, and development; encourage collaboration between the public sector and private organizations; and support access to quality, affordable care for people living with CF.
On March 17, 2022, more than 160 advocates [including Nicole Kohr] met with their members of Congress virtually to March on the Hill. Advocates asked lawmakers to co-sponsor the Pasteur Act, a bipartisan proposal that, if passed, will support the development of new antibiotics and promote appropriate use of existing ones.
Join Nicole’s team by texting your state abbreviation and district code (i.e. NC03) to 96387. *Message and data rates may apply. Text STOP to cancel/optout. Text HELP for help.
Join your local Cystic Fibrosis Chapter to take part in local events and receive the latest news. Nicole is the volunteer engagement chair of the Eastern Central North Carolina chapter.
Visit Mightywell and check out it’s latest patient-friendly products.
Use code NICOLEK10 at checkout for 10% off!
Did you know that Colie Creations Inc is a member of the Cystic Fibrosis Community Collective, a consortium of small but impactful nonprofit organizations?
Vision For The Community
The CFCC comes together to not only elevate each other’s missions, but to discover and learn from the unique experiences and perspectives of all – working together to have a greater collective impact for the extraordinary community in which they care for and serve – the cystic fibrosis community.
My Annual Tenth Birthday
When Nicole was diagnosed with cystic fibrosis at age five, her doctors told her she wouldn’t live to be 10. As of 1955, the median age for a CF patient was 10-years-old. As of November 3, 2021, the Cystic Fibrosis Foundation via the #NACFC announced that the median age of survival rate for a CF patient is 50-years-old. This video features Nicole and 50 of her closest cysters and fibros as they celebrate this milestone.
Starring: Jerry Cahill, Andy Lipman, Somer Love, Linda Bowman, Noor Elshaar, Ashley Ballou-Bonnema, Jennifer Kyle, Angel Newman, Mari Landa, Lauren Washington, Joanie Santander, Emilee Pehrson, Heather McCoy, Emily Schaller, Mary Frey, Adam Brostowitz, Marissa Benchea, Lilly Knowles, Chelsea Gagnon, Lysander “Ly” Reese, Amber Dawkins, Holly Seay, Maddie Madrid, Alex Parker, Lauren Matthews, Anthony Thompson, Ilana Berger, Wes Hawkins, Krista Wallace, Jillian Azzarelli, Lisa Borkus, Caley Sullivan, Bryn Avery, Ella Balasa, Jordan Robinson, Lauren D’Amato, Taylor Brophy, Mara Cray, Rachel Leah, Emily Rose Reed, Kate O’Grady, Sicily Russo, Nicholas Kelly, Ali Montez, Kristy O’Connell, K.C. White, Zack Swanborn, Xan Nowakowski, Kate Eveling, and Erinn!